Welcome

Welcome to the CHI (Chronic Histiocytic Intervillositis) Support website

Firstly, we’re sorry that you’ve had to come visiting here if you or someone you care about has been diagnosed with this condition.

If you’ve been diagnosed with CHI and are hunting around the web for answers, it can be difficult to find research and having found it, you may not understand it fully. Research papers are inevitably written for other medical experts and are often hidden behind ‘paywalls’ that only those with university or hospital logins can access.

This site was not created by medical experts, it was instead created by people who have been affected by this condition.  It does not promise any more answers than your own healthcare professional can provide, what it does provide is information, as much information as we can get our hands on. Every document that we have been able to find relating to CHI has been posted here and someone with medical knowledge has given a summary of its content. You can read them yourself or might find your health professional would be interested in their contents.

If you have further information, research or studies that you would like to add, or if you would like to get in touch, please feel free to contact us, or if you would like to get in touch with some of the women who have also been affected by this condition you can do so by joining us on Facebook. This is a small, private group with mostly English and French speakers. Note that our group is a closed group so your posts on there shouldn’t be visible to anyone not in the group but you should review your privacy settings on Facebook to set them how you want.

If you are a researcher or journal editor and are unhappy with your content appearing here to help laypeople understand their condition, please do get in touch and we will remove it. We don’t wish to reduce your journal income, merely to inform and empower.