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Email If you have further information, research or studies that you would like to add, or if you would like to get in touch, please feel free to contact us.

If you are a researcher or journal editor and are unhappy with your content appearing here to help laypeople understand their condition, please do get in touch and we will remove it. We don’t wish to reduce your journal income, merely to inform and empower.

Facebook a closed, international group of ladies with a confirmed diagnosis of CHI (or its related conditions). We are also privileged to have some of the Professors, Doctors and Pathologists from our Centres of Excellence as members of the group. We support, discuss and research CHI and its related conditions. Join us!

( The group is a closed group so your posts won’t be visible to anyone not in the group but you should review your Facebook privacy settings to ensure this).